Philanthropy in Action

Runner Spotlight

Marathon for Medicine

Family Is a Verb:
Luca, Paola, and Steven Wernick

2024 Team NYP Runner Image


When Luca Wernick found out he had alopecia areata, an autoimmune skin disease that attacks the body’s hair follicles and causes patchy hair loss on the scalp and body, he was confused. Alopecia did not run in his family, yet now he was on a journey he’d never imagined. Fortunately, his loving family was there to support him at every step. Together they are running the 2024 TCS NYC Marathon to promote awareness of this complex disease. 

A member of a family of skilled athletes, hardworking Luca Wernick was navigating the rigors of a new job when unexplained symptoms started to manifest. “Learning I had alopecia was something that was very confusing and troubling given the way it happened,” Luca says. “With nobody in my family ever having it, nor many around me, I never really knew what it was before it affected me.” Arising without warning, the disease required Luca to fundamentally shift his life and relationships. He continues, “... when it sprung up and I lost all the hair on my body within months, it was especially stressful not knowing what could have caused it. It also affected me in ways I never could have expected ... having to reintroduce myself to people I haven’t seen in a while and at my new job whom I had met one week with hair and again a few weeks later with none.”

Luca was tasked with reorienting his life—but thanks to his family, he would not have to handle this challenge alone. “We have a very supportive relationship where we can approach all of life’s hurdles together,” his sister Paola explains. “We are a support system for each other like no other.” In the face of Luca’s unexpected diagnosis, the family relied on their strong bonds. They rallied around Luca, providing solace and motivation as their understanding of alopecia deepened.

Familiar with NewYork-Presbyterian's presence in the region, Luca sought care at NewYork-Presbyterian/Columbia University Irving Medical Center. “I am in awe of NewYork-Presbyterian Hospital’s vast network of medical professionals and first-class care,” Paola states. Luca found himself working with a dedicated team of care professionals who centered his experience in their approaches to treatment. “I felt really heard and given the time of day... I was happy to learn about their expertise with alopecia, and it made me comfortable knowing I was going to experts,” he says. 

After some time, the compassionate care and cutting-edge clinical trials offered by NewYork-Presbyterian had improved Luca’s condition—and reaffirmed his family’s commitment to each other. “Through Luca, our relationship with NYP has grown; we have been supporting him through this process he’s been the lead for,” offers their father, Steven. “I am fortunate that we are a close family and our interpersonal chemistry is in sync. We understand each other’s thoughts and feelings.”

Inspired by their experience with NewYork-Presbyterian, the Wernick family decided they wanted to help support the Hospital and spread awareness. Steven says, “Even though we have come so far in research and treatment for alopecia, there is so much more to be done.” The trio determined that running the 2024 TCS NYC Marathon would be their ideal method of helping fundraise for high-quality care. Luca says, “Philanthropy is important to me because it allows me to contribute to something that’s greater than myself and make an impact when I otherwise would not know where to start. I am particularly grateful for the opportunity to access excellent medical care in a timely manner—an opportunity not everyone has.” Paola also shares a similar dedication to community. “Philanthropy is important to me because it allows me to contribute to a cause larger than myself,” she says. “I feel very fortunate to be able to give back to my community for a meaningful cause. If I can help change even one life, let alone multiple lives, in a positive way—that is more than I can ask for.”

Increasing knowledge about alopecia is another important facet of the family’s participation in the marathon. “We hope that more research, more options, and greater availability of resources are on the short-term horizon,” Steven says. “At the moment, the present medication is considered experimental, and it is prohibitively expensive. We need to make insurance and governmental agencies aware that this is a serious autoimmune illness and should be treated as such.

Reflecting on his journey thus far, Luca offers compassion to those who may also be facing unexpected developments in their health: “I would say (especially to any children struggling with alopecia) that while it is a challenging process, it shouldn’t stop you from living your life and embracing your diagnosis. What has happened has happened, and there are many potential solutions, some of which may not have been discovered yet. Maintaining strength, composure, and confidence is crucial, and this can be achieved either individually or with the support of those around you.
 

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